On Friday at clinic McKenna was supposed to start her next phase of treatment. (She wasn't able to start yet, because her ANC is 50 and it has to be at least 750 to start. We'll go back Friday and they'll see if her counts are high enough.) It is called Interim Maintenance. It includes a couple of meds that she hasn't had yet, so we don't know how she will react. It is, however, supposed to be less intense. Good timing for the holidays!
Next Sunday we will be leaving for Disney World. We have been looking forward to this trip for a long time. For a number of years we have been trying to do a Disney cruise with Jason's family as a family reunion. It took a little while to get the timing right to make sure no one was pregnant or had a baby too young to go. This is the year. We talked to McKenna's doctor about going and she said it really wouldn't be possible for her to do a cruise. If she were to get sick, she would need to be in a city where she could get good medical care and her doctor could communicate with the local doctors to treat her accordingly. She did say that it would be just fine to take her to Disney World....so we decided to go to Florida a week early so McKenna could participate in the vacation before the rest of the family leaves on the cruise. Her grandparents and two cousins, Katie and Karina, will also come to Disney World with us. We are really excited to have this time together. McKenna is already trying to talk her younger sisters into riding the "scary" rides with her. (I think she actually made Maddie sign a contract saying she would go on all the rides McKenna went on. I think Maddie is having "signers remorse".)
On Saturday the cruise ship will leave and McKenna and I will stay until Sunday morning. We are planning some fun things to do while everyone else is away. I told her that she didn't have to be disappointed that she wasn't going to swim with the dolphins. We could totally do that here!! The dolphins might be plastic and miniature and we might be swimming in the bathtub....but we could swim with the dolphins! (I think I really am going to make her do that and yes...I will put it on the blog!)
Sunday, November 15, 2009
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That all sounds so fun - and sometimes FUN is the best medicine!
ReplyDeleteI hope that all of you have a blast! Tell Kenna that I'm a thrill junky when it comes to scary rides. I will be looking forward to your update with pictures when you return home.
ReplyDeleteLove to all - Britt
Yay! Disney is good medicine! I hope you all have a fantastic time and that the new meds go well. Take Maddie on "Rockin Roller Coaster" first. (hee hee hee)
ReplyDeleteI hope everyone has a great time! And have fun swimming with the dolphins. ;-)
ReplyDeleteI'm so glad she still gets to go to Disney and has something to look forward to! You guys will have a great time! Safe travels!
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